Histamine Or Fructose Intolerance: The Missing Jigsaw Piece?

If you recall, in the Barrier Plan, I advise you in the early stages to check if you have any other hidden or unidentified major food intolerances so that you can make sure your diet is a healing one right from the start. Quite a few of you, understandably, have missed that bit out. I don’t blame you: there is so much else to think about isn’t there?

But, the fructose and histamine chickens appear to be coming home to roost a bit. Lately, I have had several of you follow the advice I gave here in the top five things to consider if you are not feeling better completely on the TrulyGlutenFree or Barrier Plan diets:

Have your doctor test you for delayed hypersensitivity food reactions. Again, recommended in the Barrier Plan. Food intolerance Test 1 which is designed by me and therefore unique certainly in the UK  is by far the most useful and value for money. Note in the plan, I also advise you check for histamine, lactose and fructose intolerance in case.

We knock dairy out anyway in the diets because of the sheer number of people I’ve seen over the years who have dairy issues as well as grain or gluten ones. It’s usually the secondary sensitivity I see in cases. But, perhaps we need to give histamine and fructose intolerance more consideration?

Fructose Intolerance

C wrote last week to tell me that:

I had gone TGF before starting the barrier plan and felt so much better for it so was very reluctant to do any of the tests that involved any grains- my mistake I now know!

She particularly reacted to onions, chard, coconut and other non-grain stuff and started to research other reasons for it, a lightbulb going on when she read about fructose intolerance.  She has felt much better since changing her diet to a low fructose one – she is still grain free since all grains – apart from white rice interestingly – seem to be high fructose, so there is a crossover here. Perhaps we should use that as a possible fructose problem indicator – if you can tolerate white but not brown rice, fructose could be an issue..? I need to do more research on it and will advise accordingly.

Histamine Intolerance

This, again, is cropping up regularly.

A, for example, recently discovered he is histamine intolerant:

At least knowing that I have histamine intolerance explains why I have so many more intolerances than just the usual TGF ones 

Indeed. He is now planning to check for fructose intolerance too.

The difficulty with all this is it means we end up with a very restricted diet – you’re trying to avoid several groups of foods for the different sensitivites. But, then again, most of us are anyway and it at least gives us an idea why we might react to seemingly innocuous non-grain things like.

From a treatment perspective, the basis is the same so far – heal the leaky barriers, lower inflammation and support immunity etc, – but, of course, the diet changes depending on what comes up positive on your tests.

Testing for histamine intolerance is relatively easy with a blood test. But, the problem with testing for fructose is that the test substance is corn-derived. That’s why I say do it at the start before you take all the grains out if possible. BUT, A has been researching alternative sources for us and we are currently trying to persuade the lab to use a beet sugar fructose in the tests for us grain sensitives. We will let you know.

Another piece of the jigsaw for you maybe? Thanks to all of you for letting me now what you are finding out so that I can share it and we can all learn and check the jigsaw pieces for ourselves.

In true Arnie style: I will be back. At least, I will when I  have researched it more. I am starting some histamine, lactose and fructose intolerance factsheets and resource lists for you all.

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7 thoughts on “Histamine Or Fructose Intolerance: The Missing Jigsaw Piece?

  1. It really helped me to establish that I have a fructose intolerance at the outset so encourage anyone else to follow Micki’s advice. Wonder about retesting and how long one should leave before doing so?

    • Thanks A (a different A actually ;)). Glad it helped. I suppose it is a bit like any sensitivity: how long is a piece of string. I normally say minimum 4 months on full protocol. It really depends on the particular cause of your fructose sensitivity. Is it a malabsorption problem due to a lack of the Glut-5 enzyme, or is it a gut issue? It’s known that the problem can either be genetic or related to gluten damage/hyper-permeability/bacterial imbalance. If it is related to the latter, the barrier protocol should be helping to lower it. Minefield, as per.

  2. […] Histamine Or Fructose Intolerance: The Missing Jigsaw Piece? (trulyglutenfree.co.uk) […]

  3. You write, “Have your doctor test you for delayed hypersensitivity food reactions.” Is this really something a G.P. could do – or is it wishful thinking? How would they go about it? Many years ago my G.P. at that time tested me (at my request) for sensitivity to dairy. The result came back that I had no sensitivity – because nobody had told me I should be drinking milk/eating yogurt/whatever before doing the test, and at that time I was too ignorant to realise that I should do so. It was a similar story when I did an N.H.S. faecal fat test to see if I had a problem digesting animal fat. I haven’t been able to eat animal fat for years and nobody told me I should do so before having the test – so the result came back that I had no problem. Basically I have no faith in any food tests the G.P. may offer. Maybe you aren’t as cynical as I am.

    • Ah, I think I probably am, sadly ;). That quote was taken from the original piece I referred to – the top 5 – and was originally written by Dr O at the GFS. When he says doctor, I assume he is meaning naturopathic doctor as they have a different classification in the US. I am an ND in all but name, but not allowed to call myself that. Sorry for the confusion. Agree, most GPs would actually look at you gone out.

  4. I thought you might like to read this interview between Genny Masterman and a German professor: http://www.histamineintolerance.org.uk/exclusive-10-questions-answered-about-histamine-intolerance
    Unfortunately I can’t make it into something you can click on and go; it will have to be pasted into your browser. Anyway, in his response to question no. 4, he casts doubt on the DAO test. I’ve no doubt of the truth of my diagnosis but you may be interested in reading the whole interview, which is highly technical.

    • Ooh interesting, thanks Anthony. Why can’t they write in non-doc speak, though; even I’m having difficulty following that! Perhaps it is in the translation. Anyway, I have asked the DAO test people for any comment on it and will share anything I get back. Thanks for sharing.

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