Thought I would share a bit of good news with you today. My scores are coming down!
Here’s what I said recently in the Gluten Migraine post:
The migraine used to score about 8-10 on the pain scale (10 being the worst, but I now think of it as 8 as I hadn’t experienced the jaw bone pain then with the gum infections!!). The average one now is about 2-4, with an occasional 6. They used to last 4 days and now last 2 days – again, almost on the dot of 48 hours, it just goes and then I need to sleep. A lot. If it wasn’t so bloomin’ painful, it would be fascinating!
I know the scores and length of time have changed because I keep a daily diary and score myself very quickly every night before bed and then add them up at the end of each month. I was doing really well, with the scores coming down dramatically and then consistently lowering UNTIL the recent gum flare up, which I still haven’t sussed the cause of yet. Almost under control again, but it’s so frustrating as I want to see those scores coming down. One thing I have noticed, I suppose, is that where I was scoring ONLY reactions a few months ago, I now include general stuff like colds, tiredness etc and the scores are still lowering, so that must be a good sign, musn’t it?
Well, my scores 2 years ago were off the scale at 7-8 most days and 12s were becoming pretty regular, which would have added up to a whopping minimum 200 had I had the energy to write them down. I started scoring properly this January when P bought me what we call the kitten porn diary (it has the cutest, loveliest kitten picture on the front I keep cooing at, very sad). I was determined to use it for something nice so started scoring myself every night before bed.
Here are the scores by month – you can see how much they had already dramatically dropped from around 200-odd:
March 51.5 (we had carpets fitted and I suffered more migraines as a result)
April 57.5 (gum problem flared up again, a reaction to something, still working out exactly what)
May 55 (still had gum problem and was mightily fed up 😦 )
June 29 Yes, 29!!! (gum problem pretty much gone, most days .5-1. PLEASE God or whoever is looking after me, let it stay down!)
I was SO pleased to see it that low at last. Gotta be some benefit to this restrictive diet. Well that and the fact that I bought size 12 jeans in Next – that’s Next renowned for small sizes – and they are TOO BIG. Yay! Of course, I have kept them just in case. Old IBS habits die hard.
My scores for beginning of July have started off a bit higher as I tried a new supposedly safe TGF iron supplement for you and, guess what, not safe at all. Now have a gum sore and 3 massive ulcers in my mouth. Ah well. It does look as though my gums are being the weak tissue indicator suddenly. I hope that means the migraines are waning and that would mean my blood-brain barrier is stronger. Wish me luck.
Have you started scoring yet? How are you doing?